Since I told the world about my illness, I’ve received a lot of positive comments and also a lot of questions. You can read all about my journey under the “Myalgic Encephalomyelitis” tab at the top of the blog.
I think one of the questions I get more often is what my symptoms are, especially because it is so different from person to person. I found this article which states some of the symptoms I suffer with. So today I am sharing with you my journey so far with M.E. and some of my symptoms.
These are just some of the symptoms I have, sometimes all at once, sometimes not. PEM is when your heart rate races and stays elevated after physical activity. This can also happen due to mental activity, say if you have a fight or are severely under stress. I get this one a lot, but am glad to say I’m getting a bit of control over the stress part. As I mentioned in my last M.E. post, I’ve been experiencing the physical part of this for very long.
Sleep problems are something I’ve been struggling with for a long long time. Some nights I could sleep 12 hours and some I barely sleep 4 hours.
I’ve been especially dealing with concentration problems since my last relapse. Not only that, but also difficulty understanding people – although I find this to happen more when I’m tired.
I’ve already told you about the pain before, I’ve suffered with it for a very long time too. Not only muscle, but also joint and just allover pain.
I’ve always been sensitive to light, but now I get extremely sensitive with loud noises – especially live music. I have to be very well rested to be able to deal with that kind of noises. Chills are also something I’m experiencing a lot, out of the blue and for no reason whatsoever.
Abdominal issues are something I always wrote off as having a “sensitive stomach”, turns out my belly aches and bloating have more to it than meets the eye.
I think the last point is self-explanatory. I’ve had “allergies” as long as I can remember. Sometimes better and sometimes worse, but always present, just like a sore throat. I think these two are the main issues why it takes me some time to realize when I have a cold.
If any of you have questions or even want to share your own experiences, I’d love to hear from you!